Health Update Post Infusion 1

I had my first infusion for what I’ve been thinking of as my “cancer blocker treatment” on January 7, so today, over two weeks later, I figured it would be a good time to update you on how I’m doing.

These infusions are NOT full chemo. They’re somewhat similar to treatments I had after surgery in 2024, going into May of 2025, and with those, I had zero side effects. So it’s been my hope and prayer that I would respond similarly with these. These, however, are not quite the same and do include a sizable list of possible side effects–most of which are things like stomach issues and thinning hair, but the serious one is a lung condition. (I DEFINITELY appreciate prayers that I don’t experience any serious ones!)

I’ll admit I got a little emotional when I went in on the 7th and my doctors were refilling my anti-nausea meds…and when the infusion had pre-meds for anti-nausea as well. Because I know that when I was on chemo, I felt nauseous every day. Every day from mid-May until the end of August. And y’all, I do not want to feel sick every day for the next year, so that hit me hard. Hopefully I won’t, but I did definitely get some of that belly-upset in the days immediately following the infusion. No vomitting or anything, so praise God for that…but about 8 days of feeling crummy, and seriously exhausted for the first 2 or 3. As in, sit down to read after dinner and fall asleep instead, which I never do.

The bright side was that I went in with a cold, but the steroids they gave me opened my nose up and helped me get over it, LOL. I’ll take my wins wherever I can!

I was also warned that I’m very likely to feel more tired than usual in general. Which isn’t great, given that I have 7-8 books to write this year, so prayers are VERY much appreciated for me on the energy front. One of my big goals for the year is to figure out how to rebalance my schedule to allow for more, better time for writing, which will likely mean taking time from my design schedule. Prayers for wisdom in how to juggle all those things greatly appreciated too!

They do also consider me to be immune-compromised while on this treatment, so I’ll be going back into “careful” mode, masking in crowds and avoiding anyone I know is sick.

But my oncologist did also make it VERY clear that his goal is to get me off this treatment as quickly as possible. It will still likely be a year of infusions (though likely with a break in there for my next reconstruction surgery), but he does NOT want me to be on this indefinitely, and that’s music to my ears.

As for that next surgery…so my initial reconstruction isn’t doing so well, and radiation is no doubt to blame. It can (and clearly did) damage the whole area, not just the skin but the muscles and everything else in there. In my case, my right side has tightened, meaning daily pain. The area itself is still always sore and sometimes outright painful, and even my neck/shoulder muscles have been effected. When I last saw my PT and told her that my hand was tingly, we quickly determined it was from the muscles in my neck and shoulder. When we finished the diagnostic exercises that verified that and she got to work on it, it earned a “Dang, girl!” LOL. So…yeah. I’ve been doing the exercises she gave me, but I still get a tingly hand every couple days and frequently either wake up or end my day with super tight neck/shoulder muscles that result in a splitting headache.

On Monday, I had an appointment with my surgeon, who agrees that our next step should be to remove the current reconstruction and do the deep-tissue method, which uses belly fat/skin to reshape the breasts. This is where I wanted to end up eventually, I was just hoping to defer it to “down the road.” Because I’ll be honest–I’m tired of surgeries, LOL. And timing this one is tricky. My oncologist will have to clear it, and when I spoke to him about the possibility on the 7th, he said that if my scans in March are clear, then he will be comfortable pausing the infusions while I undergo and recuperate from surgery.

Because it’s a big one. It’s long and complicated, and that means recovery is too, requiring a solid eight weeks, from those I’ve spoken to who have had it. My oncologist (a) wouldn’t want me dealing with side effects from infusions while also dealing with this recovery and (b) chemo can in fact slow and interfere with recovery in general. So there we go.

As of today, I feel good. But the cycle begins again next Thursday…so prayers are very much appreciated, and I thank you all so much for them!